WebOct 21, 2024 · The International Prader–Willi Syndrome Organisation (IPWSO) established Project ECHO® with the aim of facilitating the sharing of knowledge and the building of … WebDeveloping the IPWSO ECHO programme IPWSO Trustees attended the ECHO programme at the ECHO Institute, and in subsequent consultations identified three key roles that an ECHO programme might fulfil: first, to support individuals (usually parents of children with PWS) or small interdisciplinary groups based in specific countries to take a …
Project ECHO - IPWSO
WebJun 29, 2024 · IPWSO 215 subscribers Subscribe 3 Share 71 views 1 year ago IPWSO Caregivers' ECHO (2024): videos for professional caregivers and providers Larry Genstil, PhD, Psychologist, Israel … WebThe International Prader–Willi Syndrome Organisation (IPWSO) established Project ECHO ® with the aim of facilitating the sharing of knowledge and the building of international partnerships to... huntingdon east railway station
(PDF) Reducing global health inequalities for a rare disorder ...
WebMay 6, 2024 · IPWSO was a true presence in countries helping families to form associations, educating both parents and physicians about managing the special needs of children and adults who have PWS. Dr. Suzanne Cassidy was then elected president and Janalee Heinemann as vice president in 2010 in Taiwan. This was a pivotal time. WebDr. Tony Holland discusses new developments with a particular focus on the global COVID survey, the development of IPWSO’s Project ECHO, and two initiatives, one focusing on evaluating specialist residential services for people … WebJan 22, 2024 · What young people with PWS think about living with and curing their syndrome - research findings presented by Elisabeth Dykens, Phd., Vanderbilt University T... huntingdon election results 2022